{"id":778,"date":"2022-03-08T11:57:59","date_gmt":"2022-03-08T11:57:59","guid":{"rendered":"https:\/\/debbiepetrina.com\/?p=778"},"modified":"2022-03-15T16:45:15","modified_gmt":"2022-03-15T16:45:15","slug":"living-with-ms-is-a-b-i-t-c-h","status":"publish","type":"post","link":"https:\/\/debbiepetrina.com\/?p=778","title":{"rendered":"Living with MS is a B.I.T.C.H."},"content":{"rendered":"<p>March 8, 2022<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-666 alignleft\" src=\"https:\/\/debbiepetrina.com\/wp-content\/uploads\/2021\/12\/dreamstime_xs_22398957-200x300.jpg\" alt=\"\" width=\"200\" height=\"300\" srcset=\"https:\/\/debbiepetrina.com\/wp-content\/uploads\/2021\/12\/dreamstime_xs_22398957-200x300.jpg 200w, https:\/\/debbiepetrina.com\/wp-content\/uploads\/2021\/12\/dreamstime_xs_22398957.jpg 320w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/><\/p>\n<p>There. I said it. I\u2019m letting my hair down today. And I want to make everyone aware of it during this <strong><span style=\"color: #ff6600;\">\u201cMarch is MS Awareness Month&#8221;<\/span><\/strong>.<\/p>\n<p>This post is easy to write, because I&#8217;m having a bad day.<\/p>\n<p>Whether a diagnosed case of MS is mild, moderate, or advanced, living with it over time is<\/p>\n<ul>\n<li><strong><u>B<\/u><\/strong><strong>affling: <\/strong>by what is causing what; how long something will last; how bad will it\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 get\u2026<\/li>\n<li><strong><u>I<\/u><\/strong><strong>nterfering: <\/strong>with things I try to do, say, feel, think, see\u2026<\/li>\n<li><strong><u>T<\/u><\/strong><strong>hieving: <\/strong>of my job\/finances, my time, my libido, self-esteem, dignity, abilities\u2026<\/li>\n<li><strong><u>C<\/u><\/strong><strong>ontrolling: <\/strong>of my decisions, my activities, my social life, my emotions<\/li>\n<li><strong>Humiliating: <\/strong>as I stumble, sway, lose control of my bladder\/bowels, get\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 confused\u2026<\/li>\n<\/ul>\n<p>While there still is not a cure, I\u2019m still hanging onto hope. Tomorrow is another day. Another chance that it will be an easier day.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-744 alignleft\" src=\"https:\/\/debbiepetrina.com\/wp-content\/uploads\/2022\/02\/Orange-MS-Awareness-Ribbon-285x300.jpg\" alt=\"\" width=\"32\" height=\"33\" srcset=\"https:\/\/debbiepetrina.com\/wp-content\/uploads\/2022\/02\/Orange-MS-Awareness-Ribbon-285x300.jpg 285w, https:\/\/debbiepetrina.com\/wp-content\/uploads\/2022\/02\/Orange-MS-Awareness-Ribbon-150x150.jpg 150w, https:\/\/debbiepetrina.com\/wp-content\/uploads\/2022\/02\/Orange-MS-Awareness-Ribbon.jpg 498w\" sizes=\"auto, (max-width: 32px) 100vw, 32px\" \/>P.S. I&#8217;m wearing my orange ribbon next to the blue\/yellow ribbon (for Ukraine). It raises awareness, and questions.<\/p>\n<p>&nbsp;<\/p>\n<p>Debbie Petrina<br \/>\n<em>Author of <a href=\"https:\/\/amzn.to\/3CyU3R2\">Managing MS<\/a><br \/>\nCommunity Advocate for MultipleSclerosis.net\u00a0<\/em><br \/>\n<a href=\"https:\/\/debbiepetrina.com\/\">www.DebbieMS.com<\/a><\/p>\n<p>This entry was posted in\u00a0<a href=\"https:\/\/debbiepetrina.com\/?cat=5\" rel=\"category\">Awareness<\/a>,\u00a0<a href=\"https:\/\/debbiepetrina.com\/?cat=16\" rel=\"category\">Education<\/a>,\u00a0<a href=\"https:\/\/debbiepetrina.com\/?cat=30\" rel=\"category\">Multiple Sclerosis<\/a>\u00a0and tagged\u00a0<a href=\"https:\/\/debbiepetrina.com\/?tag=march-ms-awareness-month\" rel=\"tag\">March MS Awareness Month<\/a>,\u00a0<a href=\"https:\/\/debbiepetrina.com\/?tag=ms-communication\" rel=\"tag\">MS communication<\/a>,\u00a0<a href=\"https:\/\/debbiepetrina.com\/?tag=ms-education\" rel=\"tag\">MS Education<\/a>,\u00a0<a href=\"https:\/\/debbiepetrina.com\/?tag=multiple-sclerosis-awareness\" rel=\"tag\">Multiple Sclerosis Awareness<\/a>,\u00a0<a href=\"https:\/\/debbiepetrina.com\/?tag=understanding-multiple-sclerosis\" rel=\"tag\">Understanding Multiple Sclerosis<\/a>\u00a0by\u00a0<a href=\"https:\/\/debbiepetrina.com\/?author=1\">debbie34_wp<\/a>. Bookmark the\u00a0<a title=\"Permalink to March is MS Awareness Month\" href=\"https:\/\/debbiepetrina.com\/?p=743\" rel=\"bookmark\">permalink<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>March 8, 2022 There. I said it. I\u2019m letting my hair down today. And I want to make everyone aware of it during this \u201cMarch is MS Awareness Month&#8221;. This post is easy to write, because I&#8217;m having a bad &hellip; <a href=\"https:\/\/debbiepetrina.com\/?p=778\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,16,30],"tags":[173,314,432,403],"class_list":["post-778","post","type-post","status-publish","format-standard","hentry","category-awareness","category-education","category-multiple-sclerosis","tag-march-ms-awareness-month","tag-multiple-sclerosis-awareness","tag-multiplesclerosos","tag-understanding-ms"],"_links":{"self":[{"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=\/wp\/v2\/posts\/778","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=778"}],"version-history":[{"count":11,"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=\/wp\/v2\/posts\/778\/revisions"}],"predecessor-version":[{"id":800,"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=\/wp\/v2\/posts\/778\/revisions\/800"}],"wp:attachment":[{"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=778"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=778"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/debbiepetrina.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=778"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}